Frailty in older adults - a guide to care

It is helpful to identify people with frailty in order to plan for their care needs and arrange appropriate safeguards.

A comprehensive assessment is needed to make a definitive diagnosis of frailty.  People who might be at an increased risk and could benefit from an assessment include those who are:

• Over 85 years
• Living in care homes
• Living with dementia
• Taking 10 or more different medications
• Who are housebound
• Living with complex neurological conditions such as stroke, MS, Parkinson’s disease

Another important group are those over 65 who experience problems which are often associated with frailty i.e.

• Falls – legs gave way, found lying on the floor, collapse
• Fluctuating disability – good days and bad days with evidence of a sudden change in mobility such as getting stuck in the toilet or being unable to stand up properly
• Delirium – becoming suddenly muddled or worsening confusion in someone with dementia
• Incontinence  – new or worsening urine or faecal incontinence
• Susceptibility to side effects of medicines

Just like any other condition, the severity of frailty varies across individuals and there is a wide spectrum of disease.

Throughout the world, experts are using and trialling different ways of diagnosing, scoring and classifying frailty. Debate rages over the methods used and how appropriate and accurate they are. Typically, people living with frailty are categorised as living with Mild, Moderate or Severe disease.

The level of frailty can correlate with the level of support an individual needs – for example those with mild frailty might need very little help whereas those with severe frailty might need 24 hour support.

As frailty develops, those affected are more likely to feel tired during the day and to need help with essential day to day tasks i.e.

• finances,
• transport and technology,
• housework and laundry
• medication
• shopping
• preparing meals

These tasks are known as “instrumental activities of daily living”.

People living with more severe frailty might have difficulty with more basic day to day tasks such as bathing, toileting, eating, and dressing.

Current treatment aims to reduce the risks associated with frailty and to minimise its impact by assessing and tackling:

• Falls risks (A lot of support for frailty overlaps with care for falls).
• Mobility problems
• Incontinence
• Cognitive impairment
• Low mood
• Smoking and alcohol intake
• Social isolation and loneliness
• Weight loss/nutrition
• Physical inactivity
• Vision problems
• Medicines – stopping and starting medicines as appropriate

Depending on the circumstances a GP might involve other specialists such as a social worker, geriatrician, psychiatrist, pharmacist, dietician or community nurse. Most health centres have access to a community team of physiotherapists and occupational therapists who might also become involved.

Ultimately, the NHS recommends that those with frailty should have a personalised care and support plan.

As a relative of someone who is, or might be, living with frailty, it is helpful to recognise that they might neither seek nor appreciate this diagnosis and any related package of care.

Research from AGE UK found that older people do not like the term frailty and tend not to use it.  They perceive it as a perjorative judgement rather than a specific medical condition. Consequently, the language around frailty can act as an important barrier to care .

Also, any attempts to manage frailty might not be well received  – despite the good intentions of those aiming to provide support.  Older people can resent having care packages imposed upon them, perceiving interventions which aim to reduce their risk, as interfering and unwelcome threats to their sense of control and independence.

The AGE UK research concluded that older people living with frailty recognise that this entails living with various “losses” and many of those affected develop ways of coping by make compensatory choices in how they live their lives.

It’s worth recognising that tackling frailty is a relatively new priority and that many of those involved in caring for older people are still trying to understand the condition and how best to manage it.

The NHS is promoting an array of initiatives to help health and social care staff understand the condition and to develop services which meet the needs of those affected but it’s early days and a lot of effort is being directed towards hospitals and care homes rather than families providing care in the community.